Last weekend three retained (on-call) firefighters from Fire and Rescue NSW Goulburn 305 station climbed1504 steps to the top of Sydney Eye Tower in my full structural firefighting gear, which weights in excess of 25kg.
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They were among hundreds of firefighters making the 98 floor climb to raise money for motor neurone disease (MND).
MND is a progressive, terminal neurological disease. There is no known treatment or cure. Each day, in Australia, two or more people die from MND and more than two people are diagnosed with MND. In recent years several Goulburn people have lost their lives to this disease.
MND , also known as ALS, or Lou Gehrigs Disease, it doesn’t matter what you call it you don’t want it.
Normal healthy fit people exac get MND. It strikes indiscriminately, at anytime with no proven explanation.
It is a progressive, terminal neurological disease affecting the nerve cells (neurones) controlling the muscles that enable us to move, speak, breathe and swallow, causing them the degenerate and die.
A person’s senses and intellect are not affected.
The aim of the day is to raise as much money as possible to help with research for finding a cure or treatment for MND.
This year there there were over 590 firefighters competing with a total of $458,435 raised so far. The aim for this years climb is to raise $1,000,000.
Though they have already made the climb, Jack Zucchetto, Douglas Harrison and Quinton Hobbs would like to raise more money toward this end and encourage everyone from the Goulburn district who can, to go to their fundraising internet page and donate online at: https://firiesclimb.gofundraise.com.au/page/JackZucchetto there. Every dollar raised will directly support vital MND research at the Macquarie University MND Research Centre.