Every four days, a child is born with cystic fibrosis. There is currently no cure and CF patients are not expected to live past the age of 30.
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Every play date, school day, event or appointment, they have to be so careful how they mix with others, and endure ongoing treatments.
The Cystic Fibrosis Goulburn and District charity ball next weekend is one way you can help support local CF families and CF research.