Formed in 1971 to help people and families living with cystic fibrosis, the CF Goulburn and District Support Group hosted its inaugural 65 Roses Charity Dinner on March 10 in the Goulburn Workers’ auditorium, with more than 100 guests.
Group president Helen Peterson.talked about how the potentially fatal condition affects the lungs and digestive system with thick mucus, and described the daily effort to help CF patients live in ways that others take for granted.
A special enzyme is prepared for babies before every meal, she said, and daily physio is needed to help keep the lungs clear. This, and more, is a lifelong treatment, often administered by parents and families and so ‘unseen’ by many.
Regular hospital visits also increase with age, and every precaution must be taken to quarantine the CF patient to guard against the risk of cross-infection. CF can also result in low energy, social isolation, and mental or other chronic illness.
On the night, guest speaker Andrew Prowse of Canberra shared the story of his recent success with a double lung transplant. Another dinner guest, Sherri Wood, of Goulburn, had received a double lung transplant 18 years ago.
To get in touch with the group, look for Cystic Fibrosis – Goulburn & District Support Group online at Facebook.